The Vigdis Thompson Foundation is dedicated to the research, establishment, and publication of the latest scientific findings of this rare and serious condition.
The knowledge of these diseases is very small. This is due to the rare occurrence, and thus, the resulting limited experience of the doctors who are confronted with it. Very much is missing in the systematic research approach of these conditions. Such a research project requires the accumulation of a vast amount of data from the patients and the systematic analysis of this data.
Only with this analytical data is the continuing research possible, amongst others in the field of molecular genetics.
The originator of the foundation, Mrs. Vigdis Thompson, bequested the starting capital for the foundation upon her tragic death.
The goal of the Vigdis Thompson Foundation is the establishment of the worldwide first patient register, as well as the organization and execution of systematic research projects in the field of these diseases.
The Vigdis Thompson Foundation sees itself as the platform for patients, relatives, supporters and doctors.