Research. Help. Cure.
The Vigdis Thompson Foundation is dedicated to researching, establishing and publicizing the latest findings on Arachnoiditis and Tarlov Cysts, two rare and serious diseases.
The generous financial support of our work by the HEAD Genuit Foundation made it possible to establish a patient register that holds the data of patients with diagnosed Leptomeninges (Arachnoiditis) and raise awareness for our foundation
Welcome to the Internet forum of the
Vigdis Thompson Foundation
Our foundation is dedicated to Arachnoiditis, a chronic inflammation of the soft membranes of the Spinal cord in the lower area of the Spine and its special manifestation, the TARLOV CYSTS.
The Disease believes to be rare and less explored. It is often misunderstood by the Doctors, overcome with other diagnoses are ignored. A long path of suffering with pain, reduced sensitivity and mobility is typical. Those affected persons are significantly impaired in their quality of life and are rarely adequately treated. Worldwide there are only few medical institutions that are specialized in this.
The Vigdis Thompson Foundation wants to bring the disease public, advance its research, and gain supporters. We advise and accompany patients, inform them about symptoms, diagnostics and therapy options. At the same time, we see ourselves as a platform for those affected, relatives, doctors and interested parties. The core of our work is a foundation register that is open to the worldwide entry. In it we collect the data from patients with proven arachnoiditis and / or Tarlov cysts and evaluate them scientifically.
- Are you looking for information on the topic?
- Are you suffering from arachnoiditis and / or a Tarlov cyst or do you have any corresponding symptoms?
- You want to support our work?
If you have any questions or want to make an appointment, please do not hesitate to contact us. You can contact us to our foundation office from Monday to Friday.
The originator of the foundation, Mrs. Vigdis Thompson, bequested the starting capital for the foundation upon her tragic death.
Prof. Dr. med. habil. Jan-Peter Warnke, Senior Consultant for Special Operations at the Clinic for Neurosurgery II of Heinrich-Braun-Klinikum Zwickau and chairman of the Board of Directors of the Vigdis Thompson Foundation, has advocated targeted early therapy for arachnoiditis and Tarlov cysts for many years. His credo: giving up is not an option.
To enjoy life.
We support affected people and their relatives on the path to new quality of life.
The Goal of the Vigdis Thompson Foundation
We have made the commitment to establish the first world-wide patient register as well as the organization and implementation of systematic research projects. At the same time, we see ourselves as a platform for affected people, their relatives, supporters and doctors.
Information for Affected People
Arachnoiditis and Tarlov Cysts are rare diseases which are so little known in society. The Vigdis Thompson Foundation wants to help affected and interested people to better understand the diseases and their causes. In addition, we inform about symptoms, diagnostics and therapy possibilities.
Prof. Dr. med. habil. Jan-Peter Warnke, Senior Consultant for Special Operations at the Clinic for Neurosurgery II of Heinrich-Braun-Klinikum Zwickau and chairman of the Board of Directors of the Vigdis Thompson Foundation, researches the causes of Arachnoiditis and Tarlov Cysts.
His main goal: To find answers to still unanswered medical questions and to thus enable a targeted early therapy.